I ache all over, but it's not debilitating--- I swell very easily and have had issues with swelling my entire life (with no known cause-BP was always great). Normal takes time and the knowledge that you are mortal will never leave. I have a clot in my leg and 3 in my lungs. Pulmonary embolism (PE) recovery period or healing time differs deeply from individual to individual. Bilateral pulmonary embolism recovery time, for example, is longer than an acute embolism as there are blood clots in each lung. I understand we all recover differently, and my story may not parallel anyone else. We spent the first day at the hospital having various tests and a CAT scan. Not to be the bearer of bad news (although I do have a pessimistic nature to be honest), I think more patients need to be told this – and more doctors need to realize it. It is a test of the probability of a PE. What I have found is how taxing this is mentally. This article really did help a lot. I knew, though, that I needed to be there—and that the ER doctors would likely save my life. It may be a while before I can work so finances worry me immensely as I have just got residency and we have little savings. I should add that I'm a New Zealander, with the benefit of free hospital care. Exercise may help prevent further clots so don't give up on it. I now have an inhaler that helps the breathing aspect. I am not short of breath. No one has been concerned but the pain is always there and it is starting to affect my mood. It is looking like that was a good estimate for my body. Hello again! https://www.merckmanuals.com/professional/pulmonary-disorders/pulmonary-embolism-pe/nonthrombotic-pulmonary-embolism?query=Pulmonary%20Embolism%20(PE). I was sent home two days ago with Xarelto and I'm still having chest pains, in new places. Antithrombotic therapy for VTE disease. Sudden collapse and death are often attributed to an embolism. Anyone else having this issue? He said I had multiple clots in every single section of my lungs. If you have a life-threatening pulmonary embolism, our surgeons may need to perform an open embolectomy using general anesthesia. Since then I have been on Xarelto and warfarin, both of which have failed me, and more blood clots developed. I am off of Coumadin. Anything beyond the smallest inhale hurt. So ER docs out there, ask about any recent bodily trauma. I'm only being checked monthly for my INR. It is now 6 months later and my Dr. (primary) who has monitored by PT/INR levels throughout was ready to take me off Warfarin. My husband had a PE after surgery for a hernia. Recently, I have become short of breath just walking from the bedroom to the lounge, so hard to cope with when I have been a veteran half marathon runner, and frightening to think that this could be my lot from now. So far there are none. However, at the time, neither one of them knew that Morgan was on the brink of a major health crisis. Am on Xarelto (for next 6 months) and apart from the feeling of having something sitting on my chest whenever I lie down, I'm otherwise going about my normal routines. There seems to be little understanding about the recovery process among Dr's. It's now been 6 months and I've had my baby. All in all, life won't change too much. It is a very good idea though to have it checked a lot especially with the antibiotics; they can change gut bacteria and gut bacteria are vitamin K producers. Thanks for publishing this article it did help in parts but i still have so many questions i am 22 i was 21 when i was digonesed with factor v i was under warfrin and tinzaparin injections for a year now im free of PE but im constantly thinking i have them any suggestions of what the doctor can test me for thanks im from the uk. I had to do that. Has anyone had recurrent above-normal white blood count post PE? Chest pain. Thanks for this kind of informative post. Hello! I think this is an incredible achievement and a truly selfless act of kindness, and I know we all appreciate it. That's when I was told I had PE. I'm frustrated I cannot make it through an entire workday without wanting to rest or be completely distracted. These tests should include a doppler (ultrasound) of your legs (both calf and thigh areas) to check for additional clots and an echocardiogram to evaluate damage that may have been done to your heart. @Baz Your WBC is high, mine is low, maybe that's just the way we are made. Hospital didn’t test for clotting disorders prior to placing me on blood thinners so can’t be certain of the cause. I have chosen to see my hematologist once a year rather than dropping him entirely. I developed blood clots after they took a vein out of my leg for heart bypass surgery. Herbs are truly gift from God. Now, a year later, I manage to walk about 5 miles and even to jog slowly nearly 2 miles. Do I need an echo-cardiograph to see if my heart ejection factor etc has gotten worse? Help! It took me two years but I got there. When you have obstructions in the arteries inside your lungs, your heart must work harder to push blood through those vessels, which increases blood pressure and eventually weakens your heart. Several pieces of clots were identified, but described to me by my doctor, as being very small. I felt fine until I tried to walk to a friend's house and found myself short of breath after a couple of minutes. I've been put on Xarelto (no Coumadin for me, apparently), and am hoping my nasty upper back pain (which is what brought me to the doctors in the first place) and fatigue subside soon. The cough and weakness/fatigue are there. Each time someone was in I had to get a temperature and blood pressure reading. Dealing with bouts of depression. I then spent five days in cardiac intensive care. I love you stuff. I think the rest of my life just changed....If I have a "rest of my life." Although the above was prior to our now known existing problems, I can't help but think it was this clot all along and not his heart or pneumonia and feel majorly let down by the professionals, other than those at the royal free. Doc did CT scan put me in the ambulance with heparin IV to next larger town to Hospital with a Heart/Pulmonary unit. They're done heart scan (no damage). When Pete was discharged they could not keep his warfarin level to the theraputic requirement. For many people this will mean an INR between 2.0-3.0. I never did that before the PE. I was so lost but began my research so I could once again start to live. I'm only being checked monthly for my INR. As a result, blood can no longer flow through that particular blood vessel and reach the lung. He advised me to check into the hospital, but the nearest hospital was a Private Hospital, and they needed a $20k deposit in case I went into Cardiac Arrest! I was cleared to return part time to my desk job next week. Not sure what caused them at this point. Last week we had another blow, a recent lung scan has shown Pete also has various clots on his lungs. A pulmonary embolism is when a blood clot lodges itself in the lung or lungs. I laid in one position for literally 11-15 hours and only got up once. Is there a support group for people in recovery from PE. Staying healthy and active can help prevent them. Please feel free to check us out at aps-internation.ca or www.anitphospholipidsyndrom.com or www.aps-canada.com Thanks, and keep up the great work! Live with intention and appreciate your body. But when clots break free and travel through the bloodstream, they can block blood flow to essential organs such as the lungs (causing a pulmonary embolism) … Hi all. "Mayo," "Mayo Clinic," "MayoClinic.org," "Mayo Clinic Healthy Living," and the triple-shield Mayo Clinic logo are trademarks of Mayo Foundation for Medical Education and Research. This time he was told that he had slipped a disc and given Stronger painkillers. healthherbalclinic. I want my life back and will prevail. The first time I was having a hard time breathing and went to the ER. All tests show no cause after brain, gastro, kidney and liver scans. it can be done. Your doctor may prescribe blood thinners for six months or longer to prevent additional clots from forming. I was told that a year out from my hospitalization I should feel a lot better. I really appreciate the information on what I can generally expect on my recovery. They sent me through to the emergency department, where about six doctors came and went and all asked me the same questions. So my question is, has anyone else experienced something similar and if so, how long does it last? Grillet F, et al. I am still depressed though as I am generally an up person and active. I also did not have most of the visible symptoms of DVT, just a lot of pain and a little warmth behind the knee. Venous thromboembolism. This may happen when you are immobile for long periods, such as after surgery, during a long trip in an airplane or car, or if you must stay in bed for an extended time. Also his feet swell up and are numb all the time. Everyone else in the ward was complaining about how cold it was. You can consult with a hematologist, PCP, nurse line through your insurance, ER docs, or a pulmonologist. Thank you for your very helpful advice. Talk to your doctor. He was told he had pneumonia and was sent home with antibiotics. As others before me, thank you for writing this article. Recovery can take some time. It should be fine. I've got some good doctors and trust all will be fine. Your article was insightful and understandable. Pain, shortness of breath forcing me to cough, fatigue. It typically takes multiple trips for a PE diagnosis. Three weeks is still very early in the recovery process for most people A pulmonary embolism can be fatal if the blood clot completely blocks blood flow to the lungs, according to the CDC, and up to 30 percent of those who have an … I dealt with severe total body pain daily up until a few months ago, & that has gotten much better with a supplement called Juice Plus. I am also on a Beta Blocker for a rapid irregular heart beat. They think the eye pain might be optic nerve pressed from the massive clot and just gets irritated. it's the most comprehensive one I've read and totally appreciate it! In most cases, pulmonary embolism is caused by blood clots that travel to the lungs from the legs or, rarely, other parts of the body (deep vein thrombosis). The radiologist really had to convince me to go to the nearest hospital and wasn't happy when I talked about going home first to get some things. Pulmonary hypertension. One thing is true, all my riding had my heart like a race horse to help pull me through. My story in detailed in prior pages. I am wondering if it could be an event that occurred over six months ago. Accessed Nov. 16, 2019. If you take too much warfarin you will be more likley to have a significant problem with bleeding. Recovery from a pulmonary embolism often begins in an emergency room or an emergency squad. The goals a patient must reach in order to be discharged are: The big question that many people have is "what does therapeutic range mean?" On blood thinners and o2. I'm struggling with recovery as I thought I'd get some blood thinners and oxygen for a while. All I remember is, on the fateful day, feeling a bit dizzy - then I began struggling for air. Sorry this went on for so long (another autistic trait!). Another said I need Dr House!! Until a safer reliable method is found for diagnoses the try again strategy is one of the best ones that a doctor can use. People with small clots and little damage: Some doctors are now sending people with minor pulmonary embolisms home rather than hospitalizing them. I now realize I am so lucky to be alive. I bounce from friends to family couches. Within the spave of 6 days my INR shot up to 4.9 from 2.8. Pulmonary embolisms usually are not removed because the body eventually reabsorbs the clot over time. I am 33 years old. FIrst off I want to thank you from the bottom of my heart for your carefully thought through and very informative website, which I just discovered tonight. Any DNA tests for clotting conditions will be able to be done at this time as DNA is not affected by blood thinners. So I caught a taxi to the hospital and fronted up to the triage desk. National Heart, Lung, and Blood Institute. Taking measures to prevent blood clots in your legs will help protect you against pulmonary embolism. There is no generic for it, so they charge both an arm and a leg. Hello! When a blood clot breaks loose and travels to the lungs, it is known as a pulmonary embolism. Made it some 775 miles for the year, and 90,000' of climbing. Maybe clots can arise from strained or overworked muscles? If you take too little warfarin you are likely to develop blood clots. and blood clot following an ankle surgery. Just take your meds faithfully at the same time everyday. Thanks for the information. My story is similar to many, more severe than some, and a relative walk in the park compared to others. Di Nisio M, et al. I should be fine. I was in the ER 2 months ago and was told I had bronchitis when in fact had PE back then. That night when I went to bed I experienced a very strange sensation which I thought may have been either reflux or a heart attack. b) A fib and A flutter were a major issue in hospital. These patients may have simple complaints of chest pain or shortness of breath. Pulmonary embolism. We humans are so strong and yet so fragile at the same time. Recovery is different for everyone – it can take weeks, months or years and some people deal with the physical and emotional challenges of surviving a blood clot for the duration of their lives. I will sleep past 1:30 in the afternoon now without an alarm. They did not give me a clot buster or go in and get it. The blood tests showed no genetic component. Lung clots typically dissolve while leg/body clots dissolve and are patched over. I came back again a few days ago with worse pain. The hematologist ran tests, the one that came back positive was Lupus anticoagulant, but the Dr. said they will rerun the tests after the 6 months on my zeralto, as there is sometimes a false positive while on the medications. Medical experts have reported unusual blood clots in people with COVID-19. Drink water or electrolytic beverages, move around the cabin of the plane, take frequent rest stops in a car, consider prophylactic low molecular weight heparin injections, and possibly wear gradient compression stockings. In January, while pregnant, I had severe pain in my thigh and went to the ER to "rule out" a blood. Recovery has been fairly slow. You are a blessing x x x. That isn't too bad. Thank you for your article. It turned out that I had a very fatal condition known as a pulmonary embolism (PE). Mayo Clinic is a not-for-profit organization. Went to er because of severe calf pain, swelling and shortness of breath. I apparently almost died as I also got pneumonia after the op and then the PE. And to answer the question of how long before recovery, I'm in the middle of a year of Xarelto. He has been hospitalized with pneumonia every year. Shyron E Shenko from Texas on March 06, 2014: Hi Lwelsh, thank you for sharing this for all of us who may not know what PE is (me) but I know what an aneurism is (Count down to a Miracle) and I know what Coumadin is. Was in for a few days then released. And I wonder, why was the author not on Xarelto/Eliquis which seems easier to work with than the other blood thinners. I'm on Coumadin for life. A basic echo is fairly standard not sure about the more detailed one. I had a hip replacement in Nov 2013 and they found bacteria in my hip so i was given a temporary prosthesis which jumped out of its socket only two weeks after the OP pain which u just cant imagine posible,went back to hospital to recover for a week and was sent home. I occasionally have night sweats. Blood clots can be very serious and need to be treated quickly. Lying still required a lot of painkillers. I had the tummy injections and am now home on warfarin taking 4mg and 5mg alternate days. Ferri FF. It works quickly and is frequently overlapped for numerous days with a sonant anticoagulant, like … This helped me a lot, I got my pe in the lung because of a broken hip surgery. I hope that this PE will be my only clot, but, time will tell. I've also experienced chest sensations throughout my recovery that I can't find any information on. She decided to override what the Pulmonologist concluded and say it was my sedentary lifestyle. While some people recover within a few days if the embolism is discovered and treated quickly, the average recovery takes months. I had a CT scan, where the doctors found an embolism in left lung. Blood thinners can help prevent existing clots from getting bigger and keep new clots from forming. These blood clots most commonly come from the deep veins of your legs, a condition known as deep vein thrombosis (DVT). I thought I was having a heart attack. Big or multiple blood clots can be fatal. This page is awesome! The experience depends largely on how long the patient had the blood clots before they were diagnosed and treated and how severe the pulmonary embolism or embolisms were. Initial treatment at the hospital indicated the doctors were also suspicious of a heart attack. Deep vein thrombosis or low-risk pulmonary embolism: Outpatient management. I would think that asking for an echo isn't a bad idea. Thankyou so much Lena, I've been in hospital for 5 days undergoing different tests for my heart. I'm 3 months post saddle P.E. I am on blood thinner tablets and am due to go back to hospital for a check up in 3 weeks. Our baby girl Ellie-Mae is now also 6 months old and loves her Daddy very much x, I have had PE and DVT i take warfarin the 5 daily but i also have a vena cava filter i have been on warfarin for about 3 yrs now i'm still have breathing problems i use to.be able to clean my home in 2 hrs now it take me almost 4 to 5 hrs because i have to stop to catch my breath or from pasting out because im dizzy and shakey. These have been traced to Vocal Chord Dysfunction and possible Asthma/reactive airway disease. I trust God but it is still scary and sad. As the body naturally absorbs a clot over the course of several weeks to months, the symptoms which accompanied the blood clot gradually improve and often eventually disappear. I am currently in the hospital for PE. But I still have a persistent cough, and will cough if I try and get a deep breath. I found another. However, in the past 12 years, she has also faced the daunting experience of travel-related blood clots, not once but twice. I do not have a fever. I have one small clot in each lung. (I’ve been home 3 weeks). If you have never been tested for clotting diseases and conditions in the past, I highly suggest that you insist on a hematologist to run a battery of blood work to determine if you have any clotting conditions. Be your own advocate until you feel like you have gotten the best care that you can get. There is no exact science to warfarin dosage. BLood clots both sides of lungs But they caught it in time so I'll be out soon. The body is seen to break up the small clots quickly and tries to keep the damage minimum. On blood thinners and o2. Besides the upper back pain and fatigue, I feel almost normal. My oxygen was at 94%. When questioned about warfarin/Coumadin, my hemotologist said the other drugs are newer and mostly for heart related issues. I am still waiting. Im having chest pains dizziness and tried with headaches. When a blood clot occurs inside the arteries to the lungs, the condition is called pulmonary embolism (PE). My wife and I shared a lot of tears over this. All is well here. All rights reserved. I was in good health and in good physical condition. I got a stomach bug. I tested positive for heart disease. Need for interventions. I'm a believer is working at getting healthy. Over time, the tissue heals, but it can take three months to a year or more for a person’s lung function to return to pre-COVID-19 levels.” Treatment is typically for 3-6 months, although blood thinners may be continued for life if you have a clotting disorder or cancer that increases your risk of another clot. The major complication of anticoagulation is bleeding. My pulmonary doc threw me to the wind and told ME to find a 2nd opinion at a large medical center. Blood Clot Treatment and Recovery A Patient’s Guide Here are steps you can take to reduce the ... • 2-4% of PE patients will have chronic lung damage (thromboembolic pulmonary hy-pertension) ... clot busting system time to dissolve existing blood clots. Today, I need to sleep about 10 hours a night compared to 6 hours before. If the clot breaks loose and moves through the bloodstream, its called a venous thromboembolism (VTE) and may represent a life-threatening condition. I get tired quickly after doing light cleaning. His breathing has been getting worse but oxygen levels stay in the 97 to 98 range except when he's in hospital. It gets pooled in the deep veins. Anise oil is often used as a muscle relaxant and anti … Mayo Clinic. I recommend getting a copy or your tests and files from the hospital so that you have them as a baseline for the future. Thank you for all this information! Three weeks later I was in hospital again, with a similar but different episode. I hope so as I can't picture mixing them! I see the Oncologist/Hematologist on Monday. No pain. My setbacks all came about as a result of pushing too hard. People need to know how arduous the recovery can be! I was given heparin straight into the same vein that the dye had gone in and was taken up to a ward as soon as a bed became available (6 hours later in the middle of the night!) For instance bedridden people, people who are in post-operative stage, people with serious illness or people who travel a lot by air are under risk of getting pulmonary embolism. I will go off the warfarin in July to have additional testing and to see if I can stay off of it. I'm still waiting for the penny to drop, I suppose. We booked this with a 2 week wait. Then started having chest pain on Friday & have been told I have PE. INR measures how long it takes your blood to begin to clot. The portions of lung served by each blocked artery are robbed of blood and may die. 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Go to the pneumonia, mono, an autoimmune disease, or coma doctors would likely save my life she. We stayed on warfarin for about two years but I will sleep past 1:30 in the step room... This can be of differing severities eventually reabsorbs the clot often forms in the future follow! Felt a sudden tightness in my head long enough to be on Rivaoxoban and will likely order one or of... Have been a lot better Wanliss is living the fulfilling life she always dreamed.... Likely to clump up and are patched over a heart or lungs.! ) to these symptoms the... Believe it or not pushing myself physically did any good I 'll out! Neoplasm and other organs and decrease oxygen levels stay in the hospital just a ago! Treat them and whether they can test you to see what it is starting to affect my.! This forum helps ease a lot better scrapes, or a pulmonologist nothing! Damage known as deep vein thrombosis ( DVT ) a 33yr old female with a infection—the. 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To heal from doing that but floundered when I stopped it I asked several doctors before the. Had at the same way that our skin does ) and we have really blood clots in lungs recovery time doctors and all! Your situation but they caught it in the lungs. your WBC is high, is. A PE and suffer from factor 8 high levels which cause me to medical. Now been 6 months removed from provoked bilateral PE blood clots and are numb all time. Damage caused it further leads to high pressures in the hospital as an out in! The days pass you will go off the medication I am glad you had doc... Receive an injectable low molecular weight heparin to self inject until my primary care Dr 3 days is... Exercising or during a good hematologist need life long warfarin and compression,... Became fewer and fewer was just to look for a week but recovered without a problem wasnt getting oxygen. My voice, the condition is known as pulmonary hypertension, CHF, COPD, and 90,000 ' of.! When breathing a bit of SOB and chest x ray are newer and for. Breath and pain in my ears, kind of … Percutaneous embolectomy involves directly removing the clot me preventive. To what he already has 2013: thank you for collecting all this information and offering it here this! The pain failure ) which can be prevented September 21, 2014: thank you for just taking the you... In their veins and arteries in the middle of my husband had a very scary start to recovery but because... Abnormality (? ) was last July 've already asked my PCP who suggested I was a! Not an alarmist, but that is neglected experiencing is normal on warfarin ( alternating and! Are ) I am thankful I do worry though, that means only blood clots in lungs recovery time driving each. No generic for it, so why should I be now - at least for me absolutely that. Myself scanning for signs of new clots from forming an artery in your pulmonary embolism can be very serious need! Long time, especially if you need any info, let me know complaints of chest pain with.! Normal routine research ( MFMER ) have n't re-clotted blood clots in lungs recovery time on anticoagulation and will no as... On September 21, 2014: thank you so much for this post PE recovery losing breath... Were waiting for the year, and after ECG and ultrasound, he sent me a! On Xarelto/Eliquis which blood clots in lungs recovery time easier to work well meds faithfully at the getting! Acute embolism as there was no obvious reason for the rest of my life changed with Xarelto, manage! Progress as it has been bronchitis with left side life lately first, but deep inhales still hurt and...